When I sat down to write my surgiversary update, I realized it had been over six months since my last post. I had planned at the first of the year to start posting updates at least weekly, if not more often. The best laid plans, and all that. Spoonie life makes it hard to juggle …
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Tag:rheumatoid disease
A Day in the Spoonie Life
Let me tell you about my day. To start off, you need to know how horrible yesterday was, and the day before. Sunday, I woke up hurting in almost all of my joints. My back and neck, both hips, right knee, both wrists and many of my finger joints but most of all my thumbs …
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The Words We Use
I’ve been trying to write this post for a couple of weeks. My thoughts and feelings balked at being committed to paper. I think I’ve worked through it enough to write now, so we’ll see… First, I read an article on Migraine.com (https://migraine.com/expert/fighting-for-migraine-with-words/) by Dr. William B. Young about how the words we use affect …
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Keepin’ on keepin’ on
It’s been a while since I posted. #gradSchoolSucks and all that. I have been struggling with a lot of stuff this month. The “on this day” feature of Facebook has made it clear that October is migraine month for me, and this month was no exception. In fact, my migraine monster decided to go for …
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Do the Cha-Cha
It seems like every time I think I’m starting to make real forward progress, something sets me back. I mentioned a few weeks ago that I was pretty sure my rheumatoid disease was not, in fact, in remission as Dr. B seemed to think. My joint pain had been steadily escalating since spring, with some …
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Spoonie product review – Pill Suite
I hadn’t reviewed the Pill Suite yet because I’d had issues with the bags. I have since gotten replacements and am now THRILLED with this solution for my meds and want to share. As most Spoonies, I have a LOT of medications/supplements I take multiple times a day. I have struggled with the standard pill …
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Walking on the beach
A few weeks ago I got to take a week long business trip to Irvine, California. I took advantage of the opportunity to go out to the beach a couple of evenings I was there, and walk in the sand. I lived about a year and a half in Hawaii when I was a child, …
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WLS and Health Update
<— this pic is where I started this pic is where I am now –> I actually started this post back in March, when I was 7 months post-op. Work, grad school (#gradSchoolSucks btw), family issues, etc. derailed my good intentions to start writing regularly again. May 17 was my 9 month anniversary of …
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Brain Fog
One of the symptoms common to many chronic illnesses is “brain fog”. It’s a nebulous thing that doesn’t sound like much until you’re dealing with it. Once you have dealt with it, you realize how debilitating it is, all on its own. Trying to describe it to someone else is probably futile, but here goes. …
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What’s in a name?
In my last post, I referenced my autoimmune disorder as ‘rheumatoid disease’ (RD) instead of calling it psoriatic arthritis or rheumatoid arthritis. I’m going to continue using the terms autoimmune disorder (AI) or rheumatoid disease (RD) instead of PsA or RA because it better describes the disease process instead of just one of the symptoms. …
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